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Creighton Wall knows, it’s character that counts

By MAGGI HENRIKSON

Photos by Mary Hurlbut

Everyone says he’s a character, and sure enough, the first time I see Creighton Wall he is actually in character: Captain America.

“I love superheroes,” he says, and that’s an understatement. “I like to make people smile.”

Arriving on the beach

Creighton and his brother Spencer grew up in Nebraska, and they were always close. So when Spencer moved and started a life in Laguna, Creighton seized every opportunity to come out and visit, along with their parents. 

Back in the flatlands of Nebraska, Creighton was something of a big fish in a small pond. Just about everyone knew everyone, but especially so in the community of individuals with Down Syndrome. 

They would get together socially, often for movies, their bowling club, and regional events like the Special Olympics. 

Creighton was also known around town by his bright red VW. He would drive to his custodial job at the YMCA. 

It took him five years, but he was very determined to learn to drive, Spencer told us. “He’s a very slow, careful driver. He’s cautious, and really good.” 

“But, it’s too busy here. Too dangerous,” chimes in Creighton. He lives along Coast Highway now, and has seen his fair share of dangers. “I see people cross the street - not at a crosswalk. And ambulances. I’m not going to drive here.”

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Brothers, Spencer and Creighton Wall

That’s a relatively easy trade-off for the life of independence he’s found at Glennwood House. 

Creighton moved here six months ago to make his home at Glennwood, within a caring and safe community, where the sun shines, and people say hello. “I love it here. I don’t have to shovel snow! I love the staff, I love the food,” he says. “But not chicken salad.” 

He’s not a fan of chicken salad. 

“My buddy Carter,” he continues, “we’re the ‘dynamic duo’ of Glennwood.” They share a love of movies.

It’s an independent life no one in his family might have imagined for Creighton. Now even his parents have been smitten with Laguna, and recently bought a home here. “It’s everything I ever dreamed of,” adds his brother, Spencer.

It started with a bang

Creighton loved the beach and when he’d come for visits, he’d swim out to the buoy off Main Beach. He would meet people, and make sure they’d smile. He’d make knotted bracelets and sell them on the sidewalk during Art Walk. And he always loved Disneyland. 

“California is my wonderland,” he says.

One day Creighton’s brother gave him a birthday dream come true. He took him to L.A., to a live taping of his favorite TV show, The Big Bang Theory. “It’s my addiction,” said Creighton. “I have a life-size cutout of Sheldon Cooper in my room!” 

They had cupcakes and he even got to meet the whole cast. “They love comics, and I’m getting into them,” he said. “Because I like superheroes!” 

Creighton is perfecting his superhero persona with different costumes, and appearances on Main Beach. He’s going to be Batman for Halloween. As he knows, “It’s fun. It makes people happy.”

Books and more books

While Creighton was growing up in Nebraska, he reached that particular age and point of realization that he couldn’t eat everything he wanted. It was a tough lesson, because he has a special fondness for Cheetos and other non-healthy snacks, but his weight was climbing and he didn’t feel good about it.

 As part of the plan, he documented his journey in fitness and weight-loss in his own book, I Used to be Down, but Now I Love My Life.

He wraps up the book, stating: “The reason why I wrote this book is to share the success story of my health. I like to tell people my new way of how to look at life and how precious it is. Live on my brothers and sisters. I wrote this book for you, too. …I love my life. I want you to love it too. A healthy body is a good body. Please take care of it people. God gives us one body, treat it well.”

Now he adheres to a one-bag-of-Cheetos-a-week plan.

“I want to get my book made into a movie!” Creighton offers up, hopefully.

 His love of writing and reading also includes a huge love of libraries. He spends all his free time hanging out at libraries. “I like the Laguna Beach, Laguna Niguel, and Dana Point libraries …it’s peaceful,” he says. “I don’t like negativity and stress. I’m a positive person.” 

Enthusiastically, next he plans to write a book about recycling.

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Heavy lifting and sorting: Creighton is passionate about recycling

Creighton looks at life in terms of what he can do, which is a lot, what he wants to do which is even more, and what is most important: spreading happiness. 

It’s fun at the YMCA

On the road to fitness, Creighton did a lot of swimming and working out at the YMCA, in Nebraska. He enjoyed it so much there, that he started volunteering. And he was so good at it, and so dedicated, that they hired him on for custodial work. He worked from 5:00 a.m. till noon every day. He’s proud to say that he was named “Employee of the Year”.

He’s hoping for a similar path since discovering the Laguna Niguel YMCA. 

“Jimmy works at the front desk at the Y, and gives tours,” said Creighton. “We’re buddies. I told him I’d mention him. He’s a great guy. Jimmy, like Jimmy Olsen with Superman!” 

Jimmy is happy for Creighton’s friendship, and for his volunteerism. He takes the bus there at least twice a week, and helps out at the facility, also with their custodial duties. “It’s my stress reliever. But I won’t do toilets,” Creighton said, laughing. 

He likes to swim and hopes to be in the Special Olympics again. “I’m big on competing a lot,” he says. “I got that from my dad.” 

We look forward to following his progress in the Special Olympics, in all the sports he likes: swimming, boxing, weight lifting, and bowling.

A worldwide family

The Wall family has joined with the National Down Syndrome Congress every summer, an event that brings them all over the country to raise awareness, and foster friendships. 

The annual convention attracts thousands of people from around the globe. As the NDSC website states, “For most, it’s to hear the latest information from world-renowned experts. For others, it’s a great vacation. But, for nearly all there’s that one-of-a-kind NDSC family reunion feeling that permeates the convention weekend.” 

Creighton’s family has been enjoying the event almost every year of his life.

“There are about 200 Down Syndrome kids in our hotel, the Congress refers to as ‘self advocates’,” Spencer explains. “They share their strengths and skills, and have fun. Every summer it’s like a reunion.” 

Creighton has become close with a girl from Atlanta through this event, and they continue their friendship via Facebook. “I want to get her to move here too,” he says.

Awareness Month

Spencer Wall has a tight bond with his brother and, by association, a special commitment to the Down Syndrome community. He brought Stu News together with Creighton, in honor of Down Syndrome Awareness Month, this month. We couldn’t have been happier to get to know this charming young man, and share his story at this special time. 

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Creighton Wall

Spencer started working in Laguna, and even met his future wife through a connection to the Down Syndrome community as well. When they met, she was a nanny for a family in Laguna with a Down Syndrome child.

 Spencer is not only Creighton’s brother, he’s his biggest fan - and the feeling is mutual. 

 “I want to be more like my brother,” says Creighton. “But I’m not getting married.”

Meanwhile, Spencer is married, and has a son he named for Creighton. It’s his middle name: Samuel.

Creighton is close to his brother and sister-in-law, and is the proud uncle of their son, Sam. Along with his sister’s children, Creighton has even more bragging rights. “I am an uncle to three beautiful kids,” he says, beaming.

Thanks to Spencer’s good friend, Chris Keller, himself a father to a Down Syndrome child, Creighton has also found a new purpose; he is downright passionate for recycling. 

He goes to Keller’s Rooftop restaurant often with other Glennwood residents every Thursday to sort their recyclables. Then on Fridays, they take them in to the recycling center in Dana Point.

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He’s a “regular” at The Rooftop restaurant. Regularly helping out!

Creighton has made new friends with his same high level of abilities at Glennwood, and has been embraced by Laguna as he gives back to the community.

And his brother appreciates him in ways he may not even know. “Creighton tells it like it is,” said Spencer. “If I have learned anything from my younger brother it is to be real with yourself and others.”